Monday's Appointment

It is Wednesday and I am now just getting a chance to post about our visit with the neurologist on Monday. We have had a very busy last couple of days. Thanks for all who have been praying.

There are some great things that came out of the appointment and there are some things that are still uncertain and a bit discouraging for me. First of all, the neurologist said that it is not Muscular Dystrophy. That is a wonderful blessing! There is not to much that could have been worse then that, so although we feel that there is something going on with Micah, it is minor compared to Muscular Dystrophy. Thank you Lord for answering our prayers! Another great thing that came out of the appointment is that the neurologist praised our pediatrician for doing such a wonderful job in getting the proper care for Micah up to this point. That makes me feel more at ease in the situation to know that Micah is in good hands and that she has been and is taking all the steps necessary to get him the best care.

The discouraging part of the entire visit is that I don't feel like we have gotten anywhere else with the whole ordeal. The neurologist read the MRI that he had taken back in December and said that he did have enlarged ventricles. Basically that means that he has extra fluid inside the brain. That was a shock to us, because his neurosurgeon who has been monitoring him for that never mentioned it to us and feels strongly that fluid is not causing Micah's problems. The neurologist has placed him back in the hands of the neurosurgeon, because he gave a 50/50 chance that Hydrocephalus could be causing the problem. He also said that it could be CP, but he would let the therapist further diagnose that after she has worked with him for a longer period of time. He said that most of the time with mild CP you can't really diagnose or know the extent of it until the child is about 2 or 3. I still just wonder about the MRI. Did someone read it wrong or read the wrong one??? I wish I knew. We go back for a CT scan in June and then follow-up with his neurosurgeon, so we will know for sure then. The idea of two different opinions on that makes me uneasy, but for now I will focus more on turning that over to the Lord and enjoying my precious, lovable one-year-old.