For Those That are Interested...

I could write a book over my son's current medical history, but will try and keep it as short as possible and still inform those that are interested. My purpose for sharing this, would be so that people would pray from him and us as we face the unknown.

Since the age of 4 months, Micah's pediatrician has been keeping an eye on the growth of his head. It was at that point that his head started growing out of porportion to his body. Every check-up after that it just continued to do the same. At is 9 month visit it had finally crossed the line of concern. We were referred to a nuerosurgeon at Scottish Rite for further evaluation. We met with him, received an MRI. Which was the hardest thing at the time that I had ever seen my baby go through.) The results came back to show that he had water around the brain. The specialist said that we should not be alarmed about that, but that we would just continue to watch him. He expected his head to stop growing and for him to begin developing normally.

Well, weeks past and the concerned mom that I am I constantly watched his development and compared it to the "books." I knew that something was not right. He seemed to just be falling further behind his other friends his age. I brought my concerns to his pediatrician at our next sick visit, which have been quite frequent. He has had a constant ear infection since December 19th. I guess they have been a mixed blessing in a way, since the doctor has been able to see him on a regular basis and keep a closer eye on his development. She (the doctor) requested that we get in with an early intervention program called "Babies Can't Wait." Wanting to give Micah every chance that I possibly could, I went through the some what detailed paper work process and made an appointment for him to be evaluated. To make a long story short, he qualified for the program based on his gross motor delay and the therapist doing the evaluation told me some things about his development that I needed to mention to his pediatrician the next time she saw him. By "qualify," I mean that he gets to receive a Physical Therapist come into the home one day a week and work with him on the motor skills that he is lacking.

About a week later he was done with his dose of antibiotic and we were back at the doctor to get his ears checked. His pediatrician is just wonderful and always wants to know the latest on Micah with his therapy and visits to the specialist. It is great to have a pediatrician that you know really cares for your child, especially when they are going through some difficulties. Based on what the therapist found and past history on Micah, the doctor suspected that he could have mild CP or a muscle disorder (Muscular Dystrophy). She referred us to a nuerologist at Scottish Rite for further testing to rule out these disorders.

So that brings you up to date on Micah's current health situation. He is recently receiving therapy once a week and that has been great for him. The therapist has also been able to shed a little more light on his situation. We go for a follow up with his Nuerosurgeon tomorrow. Micah's head has grown a little since we last saw him and his gross motor development is falling behind, so we expect that he will do another MRI. We also have an appointment to see his nuerologist March 13th. He also has an appointment soon to have tubes put in his ears. This will be a busy and emotionally draining month for our family. Our prayer would be that if there be anything wrong with Micah that he have Mild Cerebral Palsy. That in itself is not what you want for your child, but it is workable and he would have a pretty normal life. But we do know that the Lord is in control and above all we pray that His will be done.

Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. Phillipians 4:6

Here It Is...My Blog!!

Well, for months Charlie has been after me to start a blog. I just didn't know if it was for me or if I would have time to keep up with one, but I have given in and here it is...."Little Sugar Mama and Son!" You might want to know..."Why did I choose that name?" There was a preschooler at our last church that would always call his mom "Sugar Mama." He just loved his mama and I thought it sounded so sweet. Now, I know that it would sound somewhat silly if that name remained when he was in middle school, but for now it sounds really cute. I have told Charlie on several occasions that I would like for Micah to call me "Sugar Mama." I know that it might sound a little crazy, but what a sweet term of endearment from a little boy to his mom. :) I have added "little" on the front, because at 1 year of age, my son is about a forth of my size (he is an average size one-year-old).

So, here it is 12:30 in the morning and I have decided to do my first post. I can't sleep (too much on my mind). So, while my husband lie in the next room snoring, I will do what he normally does and stay up late to share happenings of the day on my NEW BLOG!

The main purpose of this Blog will be to share about the "and Son" part. It is going to serve as an update for Micah's current medical condition. Just briefly, he has had some red flags apear with his development. He is currently seeing a couple of specialists for tests to rule out Cerebral Palsy and Muscular Dystrophy. It will be a great spot for friends and family to check on a regular basis to see how he is doing. This will be where I post details about each visit to the doctor and results from any tests that he might have done. This will keep Charlie and I from having to explain the same thing to everyone that we know. We don't mind talking about his situation and still will. We just thought this would be a quicker easier way to inform those that are interested. I plan to share more of his situation tomorrow when I am not quite so tired. Well, I best go to bed. My alarm (Micah) will go off at 7:00am whether I have gotten adequate sleep or not. Thanks for reading.