Tuesday, February 28, 2006

For Those That are Interested...

I could write a book over my son's current medical history, but will try and keep it as short as possible and still inform those that are interested. My purpose for sharing this, would be so that people would pray from him and us as we face the unknown.

Since the age of 4 months, Micah's pediatrician has been keeping an eye on the growth of his head. It was at that point that his head started growing out of porportion to his body. Every check-up after that it just continued to do the same. At is 9 month visit it had finally crossed the line of concern. We were referred to a nuerosurgeon at Scottish Rite for further evaluation. We met with him, received an MRI. Which was the hardest thing at the time that I had ever seen my baby go through.) The results came back to show that he had water around the brain. The specialist said that we should not be alarmed about that, but that we would just continue to watch him. He expected his head to stop growing and for him to begin developing normally.

Well, weeks past and the concerned mom that I am I constantly watched his development and compared it to the "books." I knew that something was not right. He seemed to just be falling further behind his other friends his age. I brought my concerns to his pediatrician at our next sick visit, which have been quite frequent. He has had a constant ear infection since December 19th. I guess they have been a mixed blessing in a way, since the doctor has been able to see him on a regular basis and keep a closer eye on his development. She (the doctor) requested that we get in with an early intervention program called "Babies Can't Wait." Wanting to give Micah every chance that I possibly could, I went through the some what detailed paper work process and made an appointment for him to be evaluated. To make a long story short, he qualified for the program based on his gross motor delay and the therapist doing the evaluation told me some things about his development that I needed to mention to his pediatrician the next time she saw him. By "qualify," I mean that he gets to receive a Physical Therapist come into the home one day a week and work with him on the motor skills that he is lacking.

About a week later he was done with his dose of antibiotic and we were back at the doctor to get his ears checked. His pediatrician is just wonderful and always wants to know the latest on Micah with his therapy and visits to the specialist. It is great to have a pediatrician that you know really cares for your child, especially when they are going through some difficulties. Based on what the therapist found and past history on Micah, the doctor suspected that he could have mild CP or a muscle disorder (Muscular Dystrophy). She referred us to a nuerologist at Scottish Rite for further testing to rule out these disorders.

So that brings you up to date on Micah's current health situation. He is recently receiving therapy once a week and that has been great for him. The therapist has also been able to shed a little more light on his situation. We go for a follow up with his Nuerosurgeon tomorrow. Micah's head has grown a little since we last saw him and his gross motor development is falling behind, so we expect that he will do another MRI. We also have an appointment to see his nuerologist March 13th. He also has an appointment soon to have tubes put in his ears. This will be a busy and emotionally draining month for our family. Our prayer would be that if there be anything wrong with Micah that he have Mild Cerebral Palsy. That in itself is not what you want for your child, but it is workable and he would have a pretty normal life. But we do know that the Lord is in control and above all we pray that His will be done.

Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. Phillipians 4:6

4 comments:

Tori said...

Thanks for your sweet and encouraging words.

We look foward to seeing y'all as well. I hope things do work out for y'all if this is where you want to be and what the Lord wants. I told Charlie yesterday that I thought it would be neat if you were up here and Elijah and Micah could be best buddies. We will just pray that the Lord have His will.

Christie said...

I've heard all about you, and now it's great to actually hear from you. I've been praying for Micah for months now, and will continue. I look forward to seeing how God works through the situation. I'll check back.

Charlie said...

^^ Yeah, I was actually thinking the other day about Elijah. He's already getting so big, and it felt kind of sad to think that he could see me and not know me.

Charlie said...

^(christie)

Thanks for praying for Micah, it means alot to know people are praying for him.